To The Parents Of The Disabled Child Who Doesn’t Look Disabled

Dear fellow parent,

I understand.

I understand what it’s like to be in the park and others wonder why you are sticking so close to your child, perhaps guiding them or supporting them to do what other children much younger are doing easily. I know what it’s like to see parents and children stare at your child, laugh at them or worse…walk away from them.

People would understand if your child looked different, if you were pushing them in a wheelchair or if they had a walking frame. I see your child’s disability even when they don’t look disabled.

I understand.

I have a child just like that too.

It’s the expectations isn’t it. They look fine so why are they not talking like others expect, acting age appropriate or joining in with others? The assumption that ‘looking fine’ means they are ‘fine’ and that we are the issue not the child. Oh do I understand that!

Our parenting is questioned just because our child doesn’t ‘look disabled ’ whatever ‘looking disabled’ is even meant to mean? People think we are over protective, over bearing and causing the problem. Yet they don’t know what we know. They don’t see what we see.

They can’t see autism so they don’t know it’s there.

They can’t see global delay or learning difficulties so they must not exist.

They were not there when you received the genetic diagnosis so they don’t know.

They haven’t experienced the epileptic seizures so therefore you must have made them up.

They don’t know anything about the myriad of specialists you have visited or the volume of appointments your diary is full of.

They see your child and make assumptions based on the fact they look ‘normal.’

I understand.

You dare not mention that your child receives disability money. You know from experience that you will be accused of using your child to get money.

Why? Just because your child doesn’t ‘look disabled’ so therefore according to society they can’t be disabled.

I understand.

You see I have a child like that too. I get the sideways looks when I hold my almost ten year old tight as we walk. I hear the sniggers as he flaps and makes baby noises as we walk down the supermarket aisle. I know the judgement at the school gate when my child is the different one yet he looks just like any other child.

For some reason disability is meant to be noticeable or else it must not exist. People have this strange notion that if something can’t be seen then it must not be believed.

I know how that makes you feel because I feel it too.

We should not need to justify our child disability just because they don’t look disabled as people expect. It shouldn’t matter what someone looks like and people are so quick to judge.

So know you are not alone.

Know that I understand.

I am right there with you.

You do what you need to do for your child and know I support you.

Together we can raise our beautiful disabled children who don’t look disabled and hopefully one day others will understand too.

Yours lovingly,

A mum of a stunning but very disabled little boy.

This blog originally appeared here

Dear parent, please forgive me

Dear parent, please forgive me

I am trying to think what I need to buy for dinner tonight. I don’t need to hear your child screaming in my ear and shouting at you. Is the supermarket really the place to bring your child when they are like that?
Dear parent of THAT child…I am sorry I judged you. I am you now and it is tough. I had no right to look down on you or think wrong of you or your child. Please forgive me.

Oh really? I nearly knocked your child down in the middle of the road! Could you not keep a closer eye on them? Or even better teach them road sense!
Dear parent of THAT child…I now understand completely! One second was all it took! And you told them so often and yet they still did it. It just isn’t alway possible to hold them every single minute of every day. I went off at you that day. I am sorry. Please forgive me. And please look out for my child when you are driving too.

There is NO way I would let a child that age have a dummy in their mouth! That is appalling! It is so bad for their speech, their teeth and it looks terrible!
Did I seriously think that? Gosh I was so ignorant! Dear parent, I am sorry I judged you without thinking. I am now THAT parent with a seven year old clinging to dear life for his ‘dum dum’. I get it now! Sometimes you just have to do what you have to do and ignore others. I have no idea what battles your child was facing or what was causing them to need comfort that day. Who was I to judge? I am now back in that baby aisle with a child three quarters of my height and thinking of you.

Why would you put a child as old as that in a buggy when they should be walking! Honestly some parents are just so lazy and do anything for an easy life!
Someone should have slapped me! I am now THAT parent of a much older child who has only in the last year moved from a disability buggy to a wheelchair. I am still pushing him and I am sure many people think of me now as a lazy parent! If only they knew. If only I had known all those years ago!

I wasn’t nasty before I had children. But looking back I was judgemental. I knew about parenting. I was aware of disabilities.

But I was not living it.

I never knew that pain when you feel the world is staring at you in a supermarket because your child decides to have a hissy fit because you said no. I never knew that shock and adrenalin rush when you suddenly see a car approach your child who has wandered into the middle of the road and your heart misses a beat. I had idealistic views of children and the stages they should go through.

Dear parents, please forgive me.

I am now you. And this is harder than I ever thought it would be. I salute you. And I hope you forgive me.

From a parent who once looked down on you.

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